Josie has now learned to stand up in her crib. What a big girl.
Well, as many of you know last November Josie had a weird fainting/siezure type episode that lasted about 3.5 hours. She saw her doctor and then went to a neurologist in December, had a EEG of her brain in January and everything came back normal.Things were going pretty well until two weeks ago. I was getting her bath water ready and she wanted me to get her out of her walker and I apparently didn't do that quickly enough because she started to cry hard and before I could get to her (time span of about 7 seconds) she had passed out. When I get to her she is as stiff as a board and not breathing. Once she takes that first breath (usually takes her 30 seconds to a minute) she is a limp noodle and has a very hard time staying awake and her eyes roll back into her head and she sort of startles herself to breathe. Now the first episode lasted about 3.5 hours. Well, over the past two weeks she has had these episodes 3 times. She bounces back a lot more quickly now (is back to herself in about 15-20 minutes) but nonetheless, these episodes are odd.
At first the doctor thought they were spells of her holding her breath but since it only takes her about 10 seconds of crying before she passes out he thinks there is another explanation, we just don't know what it is. I can tell now when it will happen because her cry is very distinct but we have yet to find the variable that causes this.
I struggle so badly with wanting to block everything else out and not letting her out of the house or my sight. I want to know why this is happening and I'd really like to know right now but God has put this in our life for a reason and I need to learn from this. I also want to know the right questions to ask. I am more calm now when the episodes happen so there are a few things her doc would like me to look for and also for me to try to video the next one so they can see what I am trying to explain. Please pray for wisdom, peace and patience as we talk to doctors.
Her Aunti Twy calls her sweet Josie Rae...what a pair of happy ladies....we love you Aunti
Anyway, thanks to you all....Luv Josie
4 comments:
The pictures of her in her crib are beautiful-I love the one with her looking out the window.
This must be really scary for you--I cannot imagine the emotions you must face not knowing what is wrong with your baby. I will pray for you as you come to mind. Keep us posted.
nicki
Myah!!! How in the world are you? I saw your post on Nicki's blog and hoped it was Myah Morris. Yeah!! I think of you rather regularly actually - different things prompt memories of you. Actually, we considered Myah as a name for both of our girls - I love it - but it got ruled out for some reason or another. I always thought of you whenever we discussed it (definitely one of those good name association things - NOT one of those "oh, I knew this girl named Myah and she was weird!"). I should do a post of some old college pics - maybe we should all do a retro week on our blogs (but we didn't have digital cameras back then, so it would mean scanning pics before uploading them - that seems so archaic now). I love you blog - cute kids!
hey myah, i just tagged you!
i miss you myah... are you still there.
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